I asked Ken and Sharon Krall from Sacred Heart Church to speak at our vespers series on Sunday February 28, 2016. They capture so well the art of mercy walking with their family members with special needs.
On Loan From God (By: Ken)
My childhood was a happy and safe one. My older brother Mickey and I lived with our parents in a pleasant but modest Cleveland neighborhood, within a short walk of our elementary public school, Catholic church, supermarket, and movie theater where for 25 cents we often enjoyed Saturday morning matinees of 20 cartoons and a serial episode of Flash Gordon Conquers the Universe.
My 11th birthday came two weeks before the Soviet launch of Sputnik, the first artificial earth satellite. Grownups were stunned and dismayed that America had been beaten in this first step into space, and felt that this changed everything. But I was experiencing my own personal life-changing event. We had just been told we were going to get a baby sister, and I was thrilled to begin planning all the fun things we would do. And I would love her and protect her from bullies, and teach her all the important things little kids needed to know.
Marianne was born a little on the light side according to our parents, but to me all newborns seemed a little on the light side. It wasn’t until several months later that my parents came home from the pediatrician’s office and shared with my brother and I that Marianne was profoundly retarded. I didn’t learn until much later that the term “profound” covered the 1-2% of the retardation population that never achieved IQs above 20-25. But at the time, even a dopey 11 year old knew that this sounded serious, although I didn’t know the extent to which this changed my plans. I’ll never know just how that day affected other members of the family, though it must have devastated our mother, who must have yearned for a girl companion in the household, and who may have had doubts about having provided a safe pregnancy for Marianne. And as a stay-at-home mother, she would be the one to accept most of the burden of Marianne’s day-in and day-out care. I was too immature to understand or to provide comfort to my mom during this time; rather I was too focused on my own pain, a pain that has lessened with time but still remains.
Although I had hoped Marianne and I could still develop a loving and meaningful relationship, I recall precious few joyful memories I can hold on to. Over the years Marianne was able to develop a vocabulary of several dozen words, but mastered only a couple of 2 or 3 word phrases. She often ignored my first attempts to communicate with her, looking off into space until a second or third attempt was made, and she had a habit of looking to a parent when responding with a word or a shake or a nod. Granted, I was occasionally able to buy her attention with french fries or frozen custard from the new hamburger stand she referred to as “Donnels”, or finding her favorite cartoons or children’s shows on TV. But it is difficult for me to picture her looking me in the eyes and responding TO ME during our encounters.
Because of the real and/or perceived insensitivity of many people toward those with retardation, our parents –and particularly our mother- turned inward, circling the wagons of the immediate family to protect Marianne, and in so doing, seldom again enjoyed their previous relationships with relatives and friends. It was to their credit that they remained loving, attentive and proud parents of their sons, carefully concealing their sorrows over lost dreams.
Marianne was 10 when I left home for graduate school and two years of active military service. While stationed in Germany, I had the opportunity to visit Lourdes, France, and sent Marianne a small bottle of spring water from the Lourdes Grotto. It must have been fifteen or twenty years later, while I made one of my two or three visits a year, that mom showed me a small empty bottle that I almost didn’t recognize. She had that same look as when we were out of milk and she hoped I could soon pick up more. She had carefully blessed Marianne every night of those many years from that little bottle. That was our mom.
Marianne had a special relationship with dad, spending hours in the yard while he gardened, often going down the driveway to visit with mostly friendly and understanding passer bys. In the winter, he would shovel snow and throw an occasional snowball in her direction, eliciting a hardy giggle. Her happiest time of day was going upstairs at bedtime. In her cozy bed, she would get a case of the giggles, and laugh back downstairs to dad, and back and forth they would laugh, over nothing in particular. There were times when outbursts of grabbing or pinching left mom with bruises on her arm. Dad was so hurt by these incidents, and Marianne would sense it. She would sit down next to him, put her arm around him, look him in the eye and let out a mournful groan. That was their relationship.
Marianne continued to live at home, with our parents until the age of 40, being picked up daily by the bus that took her to workshop, freeing up mom – and dad once he retired – for several well deserved hours. During my visits, she did let me hug and kiss her at her bedtime, and she welcomed my bringing her “Jesus” in the form of Eucharist when dad’s health failed and he could no longer drive them to Mass. But there was never that closeness that I had hoped for, and she would always remind my parents that visitors were for saying “Bye Bye” to.
She moved into a group home when she was too much for my father to handle, and he died shortly thereafter. On a weekend visit to our mom’s, as they walked in the neighborhood, she lost her balance, fell, and although not suffering injury, never again walked on what had suddenly become rapidly deforming legs and feet. She survived another five years in a nursing home with the benefit of a G-tube and tracheotomy, once her swallowing muscles weakened. Marianne passed away, weighing less than 80 pounds, with a simple “failure to thrive” explanation on her death certificate.
We will never know of Marianne’s thoughts, her joys and fears, her dreams. Did she understand her place of importance in our family and in the world; did she understand that she often touched us all with moments of joy and sorrow? Or did she just live her life simply one moment at a time, experiencing community, appreciating simple pleasures as they came, loving when she could and struggling with challenges when she had to? She was, and always will be, a child of God.
Looking back, I marvel at my parents’ incredible love and sacrifice, and the awesome examples they set for me. As for myself, in some of my troubled moments of unproductive thinking, I would ask myself whether an act can be considered one of kindness and mercy if it appears to be unnoticed, unappreciated, or of no apparent benefit to another human being; there was a fear in my heart that such acts are in vain.
An answer to my questioning comes to me from Matt 25: verse 40:
“And the King shall answer and say to them, Truly I say to you, Inasmuch as you have done it to one of the least of my brothers, you have done it to me.” Curiously, most English translations read when “you have done it to one of the least of my brothers”, not when “you have done it for one of the least of my brothers”. This speaks to me that even if an act of kindness has no apparent benefit to or acceptance by the other person, the intention behind it is pleasing to God, and is therefore never in vain.
In First Corinthians, St Paul teaches that Love never Fails. I’ve come to believe also that Mercy never fails, and taking some strength in this belief, I’ve become more willing to risk rejection of my efforts, when choosing to treat others with kindness and mercy. Continue reading →